One of the things we often discuss in the Diabetes Online Community is finding ways to extend our reach offline so that the support we feel can help people who can’t or don’t use the Internet. My experiences with Simonpalooza have given me some thoughts about this.
See, to the best of my knowledge, nobody was enticed to come to Simonpalooza by promises of ‘support’. I don’t think anybody crossed the country — or the globe — for ‘support’. instead, people came to meet friends, to laugh and to share stories, to gently tease each other and to eat barbecue. Yet, most if not all attendees left feeling a tremendous amount of support. The support happened, but it was the result of the stories,teasing, and barbecue rather than the reason for it.
To me, ‘support groups’ suggest uncomfortable gatherings in musty church basements or sterile hospital meeting rooms. I’ve attended support groups that were genuinely meaningful, but more that were pretty pointless. Support groups are probably worth doing, or at least trying, for many organizations. But I’m thinking, as we as the DOC seek to extend our reach into our non-virtual communities, it might be more effective to focus on getting people together socially than trying to form support groups. Once people start forming relationships, they’re more likely to find ways to better meet their joint needs.

#1 by Jamie Naessens on October 18, 2011 - 3:26 am
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You’ve said this really well. More than once I’ve gone to a group talkabout of one sort or another to talk about this or that. However, after you finish discussing this or that, there’s not much left to talk about. With the foundations laid in the DOC – by talking and laughing together online, we forge relationships that can become ever so much stronger in real life. This is the stuff real friendships are made of.
#2 by Scott Strange on October 18, 2011 - 2:16 pm
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That’s a great point, Bob. And I believe that you are correct that it is must easier to attend a social gathering than something described as a support group. One thing that I noticed about Simonpalooza was just how little diabetes was talked about. It simply was not the center of attention as it so often tends to be. Even those of us who had never met before talked about things like we were old friends.
#3 by Mike Hoskins on October 18, 2011 - 5:37 pm
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Bob: Outstanding post, my friend. You summed this up perfectly. It’s so much a part of what D-Meetups in real life are all about, and this is something that our community struggles with in trying to convince organizations such as the ADA, JDRF, and others why these “meetups” are needed. They focus on those “support group” settings or “events,” but not the friend-to-friend gathers of fun that may hardly even touch on diabetes. That’s what it’s all about – diabetes may have been what brought us together online, but it’s the friendships and relationships that draw us together in person. And that’s a method worth sharing every chance we can. Thanks for writing this.
#4 by babs on October 18, 2011 - 9:38 pm
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Great post Sir Bob. You’re absolutely right. . I came to Simonpalooza to see friends, and those friends happen to have diabetes or live with a PWD. However, I’d love ‘em even if they had a working pancreas. You get to know people, find similarities in your world and the more you find that ties you together, the harder it is to break those ties. I’m glad we’re all tied up with YOU too!
#5 by beth2027 on October 18, 2011 - 9:55 pm
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Bob, I agree. I’ve yet to be at a support group meeting that “worked” if it was set up like a support group meeting. Hanging out with friends, however, has given me more support than anyone can ever imagine. I feel a deep connection to my online friends that becomes even more real after I’ve met them in real life. Simonpalooza was amazing and changed so many lives. The best support I’ve ever gotten is having lunch with another d person and never mentioning d. Even when the meters, pumps, and cgms’s are ever present and used.
#6 by Sara on October 21, 2011 - 3:13 am
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I agree. I think the term “support group” scares most people. But isn’t that what we ended up with?
And what is this “teasing” you speak of?
#7 by Scott K. Johnson on October 24, 2011 - 7:12 am
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Very well said Bob. The support we get from spending time with other people like us sort of sneaks in the back door. Maybe because it is coming from a different angle, the support aspect is able to penetrate just a little deeper than when we have our guard up – like at a support group meeting.
#8 by Victoria on November 2, 2011 - 7:56 pm
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Teasing? I don’t know what you are talking about?
I love what you say here, and I love your impression of “support groups”. I feel the same way!! I’m so happy I was able to meet you! Each time I eat zucchini and hummus now, I think of you.